Latest News

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.

Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Training Program for Clinical Research in Rare Disease Launches New Session

November 9 2022

Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

Precision Medicine approach to Nephrotic Syndrome

February 27 2019

Perspectives on Rare Disease Research – An interview with Dr. Tiina Urv, the ORDR Program Director for the RDCRN

January 4 2018

Central IRB Impact

June 1 2017

Investigating shared molecular targets between ANCA-associated vasculitis (AAV) and nephrotic syndrome (NS)

June 5 2017

Rare Disease Research Training Program

January 4 2016