Latest News

Training Program for Clinical Research in Rare Disease Launches New Session

The National Institutes of Health-funded R25 Rare Disease Clinical Research Training Program is launching a new training program for clinical research in rare disease. Now in its seventh year, this year-long, hybrid, free program is designed to support new investigators in the field of rare disease clinical research.

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Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

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Precision Medicine approach to Nephrotic Syndrome

February 27 2019

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Perspectives on Rare Disease Research – An interview with Dr. Tiina Urv, the ORDR Program Director for the RDCRN

January 4 2018

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Central IRB Impact

June 1 2017

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consent

Investigating shared molecular targets between ANCA-associated vasculitis (AAV) and nephrotic syndrome (NS)

June 5 2017

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Rare Disease Research Training Program

January 4 2016

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Q&A with Petra Kaufmann, MD, MSc, Director Office of Rare Diseases Research (ORDR)

January 6 2016

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RDCRN Investigators and Patient Advocacy Groups – A Partnership

June 4 2016

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