What is the Vasculitis Patient-Powered Research Network (V-PPRN)?
The Vasculitis Patient-Powered Research Network (V-PPRN) is an extension of the VCRC Contact Registry. When you join the V-PPRN you will automatically be enrolled in the VCRC Contact Registry. The V-PPRN collects more in-depth information for vasculitis research on our secure patient portal.
The V-PPRN seeks to conduct research in vasculitis in a new way by working directly with patients with vasculitis:
Patients will share their own clinical experiences and data
We will use the great potential research power of computerized health records
We will conduct research that matters to patients with vasculitis, including a range of studies from surveys to observational studies to clinical trials of new treatments.